Daily Life Guide

Living Well with EPI

Practical strategies for thriving in your daily life while managing Exocrine Pancreatic Insufficiency

EPI doesn't have to control your life. You deserve to travel, socialize, work, and enjoy everyday moments without constant worry about symptoms. Real life with EPI is messy, challenging, and sometimes frustrating—but it's also completely manageable with the right tools and mindset.

Embracing Life with EPI

Living with EPI requires adjustments, but it doesn't mean sacrificing quality of life. With proper management, most people with EPI lead full, active lives. The key is developing sustainable routines, planning ahead, and knowing when to seek support.

This guide covers practical strategies for incorporating EPI management into your daily routines without letting it define your life.

Daily Management Strategies

Medication Management

  • • Set phone reminders for each meal and snack time
  • • Keep enzyme bottles in multiple locations (home, work, car, purse)
  • • Use a pill organizer for travel and outings
  • • Always carry extra enzymes - you never know when meals will be delayed
  • • Refill prescriptions early to avoid running out

Meal Planning & Preparation

  • • Meal prep on weekends for easier weekday management
  • • Keep simple, EPI-friendly snacks readily available
  • • Plan your eating schedule around your daily activities
  • • Have backup options for when plans change

Symptom Tracking

  • • Keep a food and symptom journal (apps like MyFitnessPal, Cara)
  • • Note enzyme doses, meal content, and any symptoms
  • • Track patterns to identify trigger foods or timing issues
  • • Share journal with healthcare providers at appointments

Create Your EPI Management Toolkit

From travel checklists to restaurant guides, get all the practical tools you need to manage EPI confidently in any situation. Stop feeling unprepared and start living fully.

Get Your Lifestyle Guide

Dining Out Successfully

Before You Go

  • • Check menu online to plan enzyme dosage
  • • Call ahead about ingredient modifications
  • • Choose restaurants with EPI-friendly options

At the Restaurant

  • • Don't be shy about asking how dishes are prepared
  • • Request sauces and dressings on the side
  • • Ask for grilled instead of fried options
  • • Take enzymes discreetly at the table (it's medication!)

Safe Choices

  • • Grilled chicken or fish with vegetables
  • • Pasta with marinara or light cream sauce
  • • Rice bowls with lean proteins
  • • Soups (broth-based, not cream-based)

Travel Tips

Essential Travel Preparations

Pack Smart

  • • Carry 2x your enzyme needs (account for delays)
  • • Keep enzymes in carry-on luggage, never checked bags
  • • Bring doctor's letter explaining your medications
  • • Pack portable snacks that don't require refrigeration

During Travel

  • • Take enzymes with all airplane/train meals
  • • Stay hydrated - dehydration worsens symptoms
  • • Know bathroom locations wherever you go
  • • Don't skip meals to avoid symptoms - take your enzymes!

International Travel Considerations

  • • Research medical facilities at your destination
  • • Bring prescription information and pharmacy contacts
  • • Learn key phrases in local language (bathroom, doctor, pharmacy)
  • • Purchase travel insurance that covers pre-existing conditions

Travel with EPI Without Stress

Don't let EPI limit your adventures. Our comprehensive travel guide includes packing lists, airport tips, international strategies, and emergency protocols for worry-free trips.

Complete Life Management Guide

Work and Social Life

Managing EPI at Work

Disclosure

You're not required to disclose EPI, but informing your supervisor can help accommodate bathroom access and meal timing needs.

Workplace Strategies

  • • Keep enzymes in desk drawer
  • • Store easy snacks nearby
  • • Schedule meetings around meals

Social Situations

Social events centered around food can feel challenging, but don't let EPI isolate you:

  • • Offer to bring a dish you know you can eat
  • • Eat beforehand if unsure about food options
  • • Focus on the company, not just the food
  • • Have a simple explanation ready if asked about dietary needs
  • • Suggest non-food-centered activities

Emotional Wellbeing

Common Emotional Challenges

  • • Frustration with dietary restrictions and medication schedules
  • • Anxiety about symptoms in public or social settings
  • • Grief over lifestyle changes and losses
  • • Fear about underlying conditions or disease progression
  • • Fatigue from constant symptom management

Coping Strategies

  • • Connect with EPI support groups (online or in-person)
  • • Consider therapy - chronic illness adjustment is real
  • • Practice self-compassion - bad days happen
  • • Celebrate small victories (good test results, symptom-free days)
  • • Maintain hobbies and interests outside of health management
  • • Educate loved ones to build understanding and support

Relationships and Communication

Talking to Loved Ones

Open communication helps loved ones understand your needs and provide appropriate support:

What to Explain

  • • What EPI is and how it affects you
  • • Your treatment requirements (PERT, diet)
  • • Symptoms and when they occur
  • • How they can help

What to Ask For

  • • Patience during symptom flare-ups
  • • Understanding about meal timing
  • • Help with meal planning/prep
  • • Emotional support without judgment

Building Your Healthcare Team

1

Gastroenterologist

Primary specialist for EPI management and PERT adjustments

2

Registered Dietitian

Specializing in digestive disorders and pancreatic disease

3

Primary Care Physician

For overall health monitoring and coordinating care

4

Mental Health Professional

Therapist or counselor experienced in chronic illness (if needed)

Thrive with EPI: Complete Lifestyle Guide

Get comprehensive strategies for managing every aspect of life with EPI, from travel checklists to communication scripts and emotional wellness tools.

Get the Complete Guide

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